Australian & New Zealand Childrens Haematology/Oncology Group


Bone Marrow Failure Syndromes Patient & Family Forum

28th of August 2020, from 9am – 12pm

Brought to you by Maddie Riewoldt’s Vision Centre of Research Excellence in Bone Marrow Biology.

Listen to trusted experts, have your questions answered, hear about the latest developments from clinicians and scientists at the forefront of research.

The session will be hosted by Professor David Ritchie

Head Allogeneic Stem Cell Transplantation and Deputy Director Clinical Haematology Peter MacCallum Cancer Centre and The Royal Melbourne Hospital, Director of CRE in Bone Marrow Biology, Maddie’s Vision Board Member and Scientific Advisory Committee Chair


The topics and panel of speakers will include:

Presentation & Diagnosis
Dr Anthea Greenway (Paediatric Haematologist, The Royal Children’s Hospital)

Genetic Testing in Bone Marrow Failure Syndromes
Dr Lucy Fox (Adult Haematologist, Peter MacCallum Cancer Centre)

Genetic Counselling
Anna Jarmolowicz (Genetic Counsellor, Peter MacCallum Cancer Centre)

Dr David Hughes (Paediatric Heamatologist and Transplant Physician, The Royal Children’s Hospital)

Nursing perspectives, clinical and telehealth
Mei Ling Yeh (Clinical Nurse Specialist, The Royal Children’s Hospital and Maddie’s Vision Telehealth Nurse)

Patient Perspective
Tommy Dassalo (comedian and bone marrow transplant survivor)
Jessica Lake (mother of patient)
Brenda Hinshelwood (mother of patients)

Future Directions, gene and cellular therapies
Associate Professor Andrew Deans, St Vincent’s Institute of Medical Research

Clinical Trial Opportunities, Registry and Biobank
Dr Lucy Fox

Q&A Panel
Presenters plus Maddie’s Vision CEO Nicky Long

For further information or to register: Click here