The Maddie Riewoldt’s Vision Centre of Research Excellence in Bone Marrow Biology is pleased to invite you to their third Patient and Family Forum(s) on Bone Marrow Failure Syndromes. The forum(s) will be hosted on Zoom webinar and will again include expert clinicians, scientists and allied health professionals, presenting information about the latest treatments, research results and clinical trials while also featuring some personal perspectives shared by patients and/or their families.
This year, the event will be slightly different and consist of four 2-hour specialised sessions run weekly in the evening during November. Each session will concentrate on a specific topic and you are invited to attend all sessions or only the sessions you would find of interest. With appreciation of sponsorship, registration is at no cost.
Dates and sessions
Session 1: Wednesday 2 November, 7 pm – 9 pm AEDST
Bone Marrow Failure Syndromes – general topics related to care of patients with Bone Marrow Failure Syndromes.
Session 2: Wednesday 9 November, 7 pm – 9 pm AEDST
Session 3: Wednesday 23 November, 7 pm – 9 pm AEDST
Telomere Biology Disorders, including Dyskeratosis congenita and related disorders.
Session 4: Wednesday 30 November, 7 pm – 9 pm AEDST
Ribosomopathies, including Diamond Blackfan Anaemia and Shwachman Diamond Syndrome.
To register and for more information: Click Here